Galactosaemia

[bella]

Hi. This is the 1st time I have tried to post a thread, hope i'm doing it right. My son Mac has galactosaemia and I wondering if anyone eles who uses this site suffers from it, or knows someone that does.

[ellsie]

Hi Bella and welcome to the site.:bwelcome: I don't know what that is. Can you explain a little more?

[bella]

Hi. Mac has a faulty gene, Thanks to me and his dad! His body cannot break lactose down like mine and yours. If he had lactose it would build up and make him ill. He was born on the 16th dec 2002 & was constantly sick & getting yellower by the hour. He went back into hospital on xmas eve &was diagnoised 4 days later. Mac was put straight onto soya milk & the improvement was unbelieveable. Now he is on a strict lactose free diet for life. It is more compliceted than that but didn't want to get carried away explaining it!

[matt]

hi lazy option for me but did a quick google and found the society for that condition http://http://www.galactosaemia.com/start/index.html

you should be able to get loads of extra info there but that's not to say we can't help.
you'll get loads of practical everyday info from us here.

welcome and hope things are getting better

[tigerlily]

Hi Bella! And WELCOME!

My daughter is now allergic to dairy and we seem to have had it all: gone from dairy intolerance to lactose intolerance to dairy allergy. I have to say that I found the lactose Intolerance stretch the "easiest", or should I say "least inconvenient" rather, as she could have lactose-free milk!
What milk alternative does your son drink, if any?

I've come across this condition before but don't know the in's and out's.

Vanessa.

[cnc]

Hi, welcome to the site
:bwelcome:
Hope we can be of some help :)

[goose]

Hello Bella and welcome.:bounce:

[Copper]

Matt we can always rely on you for internet sites but your link did not work
try this

http://www.galactosaemia.com/start/index.html

You got carried away with the http :)

[Nic]

Welcome!

Nic

[Dylan's Mummy]

Hi Bella. I'm quite new to the site and so far have found it really useful. I'm sure you'll find everyone friendly and so helpful, from advice to recipes. My son is 2 and has a dairy and egg allergy, which he has had from birth. I've managed to find loads of alternatives, as I'm sure you will too, so they don't go without or feel different. Hope you enjoy the site-I know I do. My husband jokes that I'm addicted to it, as I'm on it so often!!

[butterfly]

Hi Bella
I have Galactosaemia. When I was born I was very sick, and the doctors did not know what was wrong with me and I was losing so much weight that I could have easily died. I had a Uncle born (in 1940) that was a very sick baby, he died after 5 days and possibly had galactosaemia too, but at that time doctors didnt know anything about galactosaemia.

[matt]

welcome to the site. hopefully we can help by giving ideas on how to avoid dairy and the stuff you can eat.

heck if not it's still a friendly spot to have a natter to likeminded fools!:)

[bella]

Hi butterfly. how are you? Are you a member of galactosaemia support group as well as this? Loads of questions to ask you, like how you cope and what you eat. You may know of lots of lactose free foods i have never heard. Mac who has galac. is 3. We always seem to be him the same meals, poor thing!!

[ellsie]

What does he normally eat? What are his favourites?

[Caroloujo]

Hi Bella and Butterfly....I too have galactosaemia and when i was a baby i too was very poorly...I am now 39 and on a soya based diet......I actually cooked lasagne for me tea, and it was nice......Hope your son is fine,, and if you like to chat feel free to pm me.....There is a new galactosaemia website and here is the address ....www.galactosaemia.org
There is loads of news and info on there.....Hope to speak soon....x

[butterfly]

Hi Shakylou
Where are you from? Do you have all the other problems associated with Galactosaemia as well? I would like to keep in regular contact with you so we can exchange info and become good friends.